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My Fuel Bubble

  After years of traumatic experiences for my Autistic teen at physical schools, mainstream and specialist, and for us as a family, we have all greatly benefited from access to education from home. Recently, he tried to put into words why this was important for him and shared the idea of his ‘fuel bubble’. He explained that his fuel bubble has several components. It is the physical space, around his desk, as well as the desk itself, set up just the way he likes it. People coming into his space, especially without warning or preparation, use up his available fuel. Even familiar people coming within a certain distance can have this effect. The closer to the desk, the more fuel is used up. Meanwhile the items he chooses to have close, and the way his desk is organised, his way, gives him energy. When inside his fuel bubble he often connects to others’ fuel bubbles. This can be through virtual connections online, even YouTube videos, but also through real life interaction. Chatting and...

The white-washing of neurodiversity-affirming support


In doing neurodiversity-affirming work, it is important that we challenge racism. Hard agree. Yet, I rarely see enough engagement on social media platforms from ND-affirming advocates and organisations with real-time, lived-experiences that are THE FIGHT against the surge of racism, fascism and apartheid currently raging across our planet. 


Where are the responses to the genocide in Gaza, Congo, Sudan? 

Where are the 'supports' and the re-posts?

Where is the synthesis, the equal outrage and solidarity? 


Surely...

'neurodiversity' means all humans

And...

'affirming' means calling for justice beyond just our 'western', 'safe', 'sanitised' environment?


To say that challenging racism is important is one thing, but it is not actually 'doing that work'...it is merely ticking a superficial box of 'good intention', and that is not work, it is benevolent 'white' gloss.


Check your privilege! 

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